Leukemia & Lymphoma Society

Director, Federal Public Policy

Job Locations US-DC-Washington
Job ID
# of Openings
Public Policy & Advocacy
FLSA Status
Full Time Regular


How many people can answer the question, "What do you do for a living?" with the answer, "I help find cures for cancer." At LLS, employees take our mission seriously. Whether you work in one of our chapters, are an accountant at the national office or a specialist in our Information Resource Center, you work each day on making our mission a reality: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Join us and give new meaning to the word, "job."


The Leukemia & Lymphoma Society’s (LLS) Office of Public Policy seeks a dynamic and effective professional to help lead policy research, analysis, and development in support of the organization’s federal policy campaigns.


The Director, Federal Public Policy is the counterpart to the Director, State Public Policy. Each Director is responsible for a portfolio of policy issues drawn from LLS’s larger policy agenda. The two Directors will work in close coordination and at times work across the state/federal division of labor, to ensure that the relevant expertise is applied to the issue(s) at hand. LLS’s priorities include ensuring access to high-quality health insurance coverage among all blood cancer patients; strengthening and accelerating the process of drug development and approval; and sustaining public investment in biomedical research, including in pediatric oncology. The latter two issue areas are primarily responsibilities of the Director, Federal Public Policy.

Additional Position Information

Reports to: Executive Director, Federal Government Affairs Location: Remote/work from home


  • Serve as a go-to source of knowledge and insight regarding the health care policy landscape at the federal level, keeping the team’s government affairs leadership apprised of emerging trends
  • Help lead the annual process of developing LLS’s annual slate of policy priorities, advising on if/where to adjust priorities throughout the year
  • Produce and maintain LLS position statements and supporting collateral
  • Provide timely analysis of federal policy proposals as they emerge (e.g., proposed regulations, recently filed bills), consistent with LLS’s policy assessment procedures and framework
  • Oversee all aspects of substantive policy research projects commissioned from external experts, which may include designing scopes of work, securing funding, providing project management, and partnering with colleagues to promote findings
  • Collaborate with the LLS Education & Services Department to advance health services research
  • Grow LLS’s visibility in the federal policy arena by representing the organization in relevant speaker’s venues and by developing alliances with colleagues at key patient organizations, provider associations, payer community and industry partners
  • Provide issue education for government affairs and grassroots advocacy colleagues and support the education of LLS advocates as well, working closely with staff colleagues to identify areas of need and to execute trainings
  • Help design and deliver internal policy briefings to the organization’s senior and/or executive leadership team, both proactively and in response to requests
  • Co-manage policy consultants, ensuring that their expertise is fully utilized and that deliverables are timely and of high-quality
  • Produce materials on a quarterly basis to help keep the LLS Public Policy Committee apprised of LLS’s policy priorities and engaged in providing directional input
  • Maintain a strong understanding of LLS’s patient access programs and revenue-generating campaigns, to help promote the organization and its initiatives as needed


Education & Experience Requirements

  • Bachelor’s degree in a relevant area of study; advanced degree preferred
  • Minimum of 5 years’ experience working on health care policy issues


Position Requirements

  • Sophisticated understanding of current health care policy issues and relevant stakeholders
  • Proven ability to communicate effectively in both verbal and written formats
  • Experience anticipating public policy trends in the health care sector
  • Strong understanding of the current political environment and of policy-making processes, including both legislative and regulatory processes
  • Experience working across multiple functions within an organization to advance team- and enterprise-level goals
  • Demonstrated ability to work collaborative and achieve consensus across a matrix environment


Physical Demands & Work Environment

  • Physical demands are minimal and typical of similar jobs in comparable organizations
  • Work environment is representative and typical of similar jobs in comparable organizations
  • Will require occasional travel, including to LLS’s national office in Rye Brook, NY and to the LLS Office of Public Policy in Washington, DC


The statements herein are intended to describe the general nature and level of work being performed by employees, and are not to be construed as an exhaustive list of responsibilities, duties, and skills required of employees. Furthermore, they do not establish a contract for employment and are subject to change at the discretion of the Company. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.


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